Web
Links of Interest
 The
Internet is a great source for current, accurate information. However,
because of the great amount of information available online, using
the Internet can become frustrating and overwhelming. The following
list of web sites was designed to aid in your online information
search. It is by no means a complete listing of sites, but is a
tool to help you get off to a good start in your Internet exploration.
GENERAL INFORMATION ON PD
CAREGIVER INFORMATION
MAILING LISTS
MEDICAL SEARCH ENGINES
RESEARCH SEARCH ENGINES
MEDICATION
DEEP BRAIN STIMULATION
CLINICAL TRIALS INFORMATION
OTHER HELPFUL INFORMATION
GENERAL INFORMATION ON PD:
American Parkinson Disease Association, Inc
www.apdaparkinson.org
Provides information on PD and on the APDA’s services and
activities. Provides listings of APDA Information and Referral
Centers throughout the US, as well as available literature.
World Parkinson Disease Association
www.wpda.org
Provides a weekly updated listing of worldwide PD research and
news.
The Parkinson’s Web
pdweb.mgh.harvard.edu
Provides links to PD organizations, treatment, and research centers.
The Parkinson's Disease Information Exchange
Network Online
www.parkinsons-information-exchange-network-online.com
Provides a searchable database of online articles and links to
other online resources.
The National Parkinson Foundation
www.parkinson.org
WE MOVE
www.wemove.org
Worldwide Education and Awareness for Movement Disorders is a
non-profit organization whose primary mission is to increase awareness
of movement disorders among healthcare professionals and the public.
The site provides information on movement disorders and treatment
options.
National Institute of Neurological Disorders
and Stroke
www.ninds.nih.gov
Provides information on neurological disorders and research.
Online tutorial in Parkinson’s disease:
medweb.bham.ac.uk/http/depts/clin_neuro/teaching/tutorials/parkinsons/parkinsons1.html
Provides overview of typical and atypical PD, including causes,
symptoms, and treatment.
“James,” a site about Parkinson's
disease
james.parkinsons.org.uk
Provides information on PD, links to other online resources, and
a directory of PD e-mail mailing lists.
Young Parkinson's
http://www.youngparkinsons.org
Provides information for young-onset Parkinson patients
CAREGIVER INFORMATION:
National Family Caregivers Association
www.nfcacares.org
This is a grass roots organization created to educate and support
the millions of Americans who care for chronically ill loved ones.
Family Caregiving Alliance
www.caregiver.org
A non-profit organization providing general information on caregiving
and links to community services and support.
New Lifestyles Online
www.newlifestyles.com
Provides information on senior living and care options, including
independent retirement communities, assisted living, nursing homes,
Alzheimer's care, and home or hospice care.
MAILING LISTS:
The Parkinson's Community on the Internet,
PARKINSN
james.parkinsons.org.uk/community.htm
This is a worldwide mailing list about PD. It provides an online
forum and support group for PD patients, caregivers, and physicians.
The Parkinson's Community on the Internet,
CARE
james.parkinsons.org.uk/Lists/care.htm
This is an online support group and mailing list for caregivers.
PDKIDS, for kids living with parents who
have Parkinson's
www.coles.org.uk/pdkids.htm
An online mailing list for kids who love someone with PD, established
by the APDA Young Parkinson's Information and Referral Center
in partnership with the Adrienne Coles Memorial Trust.
Parkinson's Disease News
www.pdnews.org
Provides e-mail postings of relevant news items and articles of
interest to the Parkinson's community.
MEDICAL SEARCH ENGINES:
Web MD
www.webmd.com
Provides basic information, written for the lay person, on health-related
questions.
Medscape
www.medscape.com/px/urlinfo
Provides scientific abstracts and links for health-related questions.
Online Medical Dictionary
cancerweb.ncl.ac.uk/omd/
Useful for definitions of medical terminology.
RESEARCH SEARCH ENGINES:
National Institute of Health
www.nih.gov
Health information, grants and funding opportunities, news, events,
and scientific resources.
National Library of Medicine (Pubmed)
www.ncbi.nlm.nih.goventrez/query
Neurosciences on the Internet
www.neuroguide.com
Provides general information on brain related topics, including
grants and funding opportunities, and links to other scientific
resources.
MEDICATION:
Pharmaceutical Research
and Medications of America
www.phrma.org
Provides information on medicines, including a Directory of Prescription
Drug Patient Assistance.
RxHope
www.rxhope.com
Supported by Pharmaceutical and Research Manufacturers of America.
Provides more information on prescription drug assistance.
Epocrates
www.epocrates.com
Provides a free downloadable database of peer-reviewed drug information
including off-label indications.
DEEP BRAIN STIMULATION:
Medtronic, Inc
www.medtronic.com
Medtronic is the medical technology company that manufactures
DBS implant. Provides information and research provided on how
the device works and what it is useful for.
CLINICAL TRIALS INFORMATION:
Center Watch
www.centerwatch.com
Lists industry and government funded clinical trials across the
US. Provides basic information on how clinical research is conducted.
Mayo Clinic
www.mayo.edu/fpd
Nationally recognized PD research group. Provides information
on current research and clinical trials.
National Institutes of Health
www.ClinicalTrials.gov
Provides listing of Parkinson's disease clinical research studies
and contact information. This site also provides information on
the clinical trial process.
PDtrials.org
www.PDTrials.org
Acts as a comprehensive resource for finding and understanding
clinical trials in PD.
OTHER HELPFUL INFORMATION:
American Association of Retired Persons (AARP)
www.aarp.org
Provides health information for senior citizens, and links to
community resources and services.
Medicare Information
www.medicare.gov
Provides searchable information on the basics of the Medicare
program and its coverage.
Beth Israel Medical Center Department of Pain
Medicine and Palliative Care
www.stoppain.org
Provides educational materials, bibliographies, research tools,
email discussion groups, courses, conferences, clinical trial
information, and support groups.
Reprinted with permission from
the APDA Information & Referral Center at the University of
Arizona in Tucson.
For help with your Internet usage, feel free to call
the CT APDA Information & Referral Center at 203-789-3936 or toll-free at 1-877-282-7328.
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