Web
Links of Interest
 The
Internet is a great source for current, accurate information. However,
because of the great amount of information available online, using
the Internet can become frustrating and overwhelming. The following
list of web sites was designed to aid in your online information
search. It is by no means a complete listing of sites, but is a
tool to help you get off to a good start in your Internet exploration.
GENERAL INFORMATION ON PD
CAREGIVER INFORMATION
MEDICAL SEARCH ENGINES
RESEARCH SEARCH ENGINES
MEDICATION
DEEP BRAIN STIMULATION
CLINICAL TRIALS INFORMATION
OTHER HELPFUL INFORMATION
GENERAL INFORMATION ON PD:
American Parkinson Disease Association, Inc
www.apdaparkinson.org
Provides information on PD and on the APDA’s services and
activities. Provides listings of APDA Information and Referral
Centers throughout the US, as well as available literature.
World Parkinson Disease Association
www.wpda.org
Provides a weekly updated listing of worldwide PD research and
news.
WE MOVE
www.wemove.org
Worldwide Education and Awareness for Movement Disorders is a
non-profit organization whose primary mission is to increase awareness
of movement disorders among healthcare professionals and the public.
The site provides information on movement disorders and treatment
options.
National Institute of Neurological Disorders
and Stroke
www.ninds.nih.gov
Provides information on neurological disorders and research.
Young Parkinson's
http://www.youngparkinsons.org
Provides information for young-onset Parkinson patients
CAREGIVER INFORMATION:
National Family Caregivers Association
www.nfcacares.org
This is a grass roots organization created to educate and support
the millions of Americans who care for chronically ill loved ones.
Family Caregiving Alliance
www.caregiver.org
A non-profit organization providing general information on caregiving
and links to community services and support.
MEDICAL SEARCH ENGINES:
Web MD
www.webmd.com
Provides basic information, written for the lay person, on health-related
questions.
RESEARCH SEARCH ENGINES:
National Institute of Health
www.nih.gov
Health information, grants and funding opportunities, news, events,
and scientific resources.
MEDICATION:
Pharmaceutical Research
and Medications of America
www.phrma.org
Provides information on medicines, including a Directory of Prescription
Drug Patient Assistance.
RxHope
www.rxhope.com
Supported by Pharmaceutical and Research Manufacturers of America.
Provides more information on prescription drug assistance.
DEEP BRAIN STIMULATION:
Medtronic, Inc
www.medtronic.com
Medtronic is the medical technology company that manufactures
DBS implant. Provides information and research provided on how
the device works and what it is useful for.
CLINICAL TRIALS INFORMATION:
The Institute for Neurodegenerative Disorders (IND)
www.indd.org
The Institute for Neurodegenerative Disorders (IND) is a nonprofit research institute located in New Haven, CT. IND conducts important clinical trials in the area of Parkinson’s disease.
National Institutes of Health
www.ClinicalTrials.gov
Provides listing of Parkinson's disease clinical research studies
and contact information. This site also provides information on
the clinical trial process.
PDtrials.org
www.PDTrials.org
Acts as a comprehensive resource for finding and understanding
clinical trials in PD.
OTHER HELPFUL INFORMATION:
American Association of Retired Persons (AARP)
www.aarp.org
Provides health information for senior citizens, and links to
community resources and services.
Medicare Information
www.medicare.gov
Provides searchable information on the basics of the Medicare
program and its coverage.
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